Help shape the future of Hidradenitis Suppurativa (HS) care
Contribute samples and health information to help researchers better understand HS and support future treatments. Stay connected to your research contributions over time and help build a deeper understanding of HS. Eligible participants receive a $100 Amazon gift card.
About this study
Impactful science depends on keeping participants informed and involved.
AminoChain is launching a study to create a next-generation, connected patient registry that links your samples and heath information into a living library of patient contributions that remains connected to the people behind them, creating a more complete picture of Hidradenitis Suppurativa (HS) for researchers to learn from.
Grounded in transparency and supported by privacy-first technology, this study will give participants a clear window into how their contributions are used, providing the foundation for staying informed and meaningfully engaged as the science advances.
Who Can Participate
You may qualify if you are:
18 years and over and live in the United States
Have a confirmed diagnosis of Hidradenitis Suppurativa (HS)
Not on a biologic therapy
Willing to provide blood + skin samples
Age
18 years and over
Diagnosis
Hidradenitis Suppurativa (HS)
Residence
United States
Compensation
$100 gift card
What To Expect
1. See if you may qualify
During a routine clinical visit, your care team may introduce you to the study and ask if you’re interested in learning more.
2. Join the AminoChain Research Registry
If you’re interested and eligible, you’ll sign up through the AminoChain Participant Portal and join our longitudinal research registry.
3. Contribute samples and health information
You’ll schedule a research visit to provide blood and skin samples and answer questions about your health. You can also choose to provide an optional at-home stool sample.
4. Stay connected
After your research visit, you’ll remain connected through the Participant Portal, where you can receive study updates and learn about opportunities to contribute to future research.
Your Window Into Research
Research participation shouldn’t end when you provide a sample. The AminoChain Participant Portal keeps you connected to your research journey, giving you one place to complete study activities, receive updates and compensation, and discover future opportunities to contribute.
The Team Behind This Study
AminoChain is working to advance patient-centered research in Hidradenitis Suppurativa. By combining secure research technology with deep clinical experience and close partnership with the HS community, we are working to make research more inclusive, equitable, and focused on what truly matters to patients.
Hidradenitis Suppurativa (HS) & Study FAQ
What is Hidradenitis Suppurativa (HS)?
Hidradenitis Suppurativa is a chronic inflammatory skin condition that causes painful lumps, abscesses, and tunnels to form under the skin, most often in areas like the armpits, groin, and buttocks. HS occurs when hair follicles become blocked and inflamed, triggering a persistent immune response.
How is Hidradenitis Suppurativa treated?
Is this a clinical trial?
Who runs this study?
What happens to my sample?
How long does participation take?
How is compensation provided?
How is my privacy protected?
Can I withdraw from this study?
Will I receive individual results?
