Who can join
By joining with your condition, you show us where research is needed and help bring new studies to your community. If you have no known health condition, your contribution provides an important point of comparison, helping researchers better understand health and disease.
Enrolling
Myasthenia Gravis
Enrolling
Atopic dermatitis
Don't see your condition?
Join with your condition and help bring new studies to your community.
What you get
Most of your condition happens outside the clinic. The app is where you keep track of it, so your care team and researchers see the whole picture.
Health journal
A quick check-in on how you feel, what you took, and what you did. Over weeks it becomes a picture of your condition you can bring to your next appointment.
Health profile
Your diagnosis, treatments, and connected medical records in one place, so you never have to retell your history from the beginning.
Rewards
Points for everything you do in the app, from registering, to answering a survey, to donating a sample. Redeem them for gift cards whenever you like.
See your impact
Follow your sample from receipt to research
Your sample never disappears into a freezer. You get a notification when it arrives, and updates as the study moves forward.
Points and rewards
You earn points for what you do in the app: joining, completing surveys, connecting records, donating a sample. Redeem them for gift cards whenever you like. Some study activities, such as a skin biopsy, are compensated at higher rates and explained before you agree.
100 points = $10
Gift cards from brands you use
Redeem in the app whenever you like.
Every point accounted for
Your balance and history, with each contribution listed.
Give points back to research
Donate points to sequencing or a study in your condition
What comes back to you
Health reports
A personal summary of your check-ins and surveys over time, ready to share with your care team.
Data from your samples
The data types generated from what you donated, and insights where the study returns them.
Where you sit in the cohort
Aggregated statistics on people with your condition, and how your own picture compares.
Publications
The papers and findings your contributions were part of, in plain language.
The AminoChain Research Registry is a research program that connects people with opportunities to contribute to biomedical research. By joining, you can share information about your health, participate in surveys, and potentially donate biological samples to help researchers better understand diseases, develop new treatments, and advance scientific discoveries.
What is the AminoChain Research Registry?
Who can join the registry?
What will I be asked to do?
What is a biorepository, and why are biological samples collected?
Why does AminoChain collect health information over time?
How will my samples and health information be used?
Will my personal information be kept private?
Will I receive results from research involving my samples?
Will I be compensated for participating?
Can I withdraw from the registry at any time?
